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UVic Researcher seeking participants for study

A doctoral student at the University of Victoria is studying the different ways that parental caregivers of adults with intellectual disabilities plan for the future of their child.

Letter from researcher to Caregivers:

Factors Associated with the Selection of Future Planning Approaches by Parental Caregivers of Adults with Intellectual Disabilities

Phase 1

Dear Caregiver,

This research project is aimed at exploring the factors that are associated with parental caregivers selecting particular approaches to planning for the future of their adult children (i.e., 19 years of age and older) with intellectual disabilities (i.e., significant limitations both in intellectual functioning and in adaptive behaviours, which extends to a variety of social and practical skills). If you are the parent of an adult child with an intellectual disability, you are eligible to participate.

While research in the area of intellectual disabilities overwhelmingly emphasizes the importance of parental caregivers planning for the future of their children, serious gaps still remain with respect to our understanding of the future planning process. For example, while several future planning approaches have been developed as ways of aiding parental caregivers in planning for the future, to date, no research has explored the various reasons or factors caregivers consider when selecting a particular approach to future planning. Parental caregivers who have engaged in some form of future planning have important information to share that could be instrumental in helping to develop ways of better assisting and supporting caregivers as they face the challenging task of planning for the future of their loved ones.

Participating in this research involves completing a brief electronic questionnaire, which will be emailed to you once you have emailed the researcher the signed and dated consent form (see attached). The questionnaire will take approximately 20 minutes to complete. In addition, if you agree to it, there is the possibility that you will be contacted at a later date by the researcher for a follow-up audio-recorded phone interview. The phone interview will take approximately 45-60 minutes. You are under no obligation to agree to follow-up contact, and indicating that you would be open to being contacted at a later date does not guarantee that you will be contacted.

I am a graduate student in the Clinical Psychology Program at the University of Victoria.  If you have any questions to ask me before agreeing to participate, please phone me at (250)-858-5836 or email me at cainesm@uvic.ca. My academic supervisor is Dr. Holly Tuokko, Department of Psychology, University of Victoria.  She may be contacted at (250)-721-6350.

If you are interested in participating, please review and complete (i.e., type your name and date at the bottom of the form) the attached consent form and then email it back to me cainesm@uvic.ca. Once I have received your completed consent form, I will email you the questionnaire. If you share your caregiving responsibilities with a spouse, feel free to jointly complete the questionnaire with him or her; please submit only one completed questionnaire per household. Thank you for considering this research project.  I look forward to hearing from you.

Yours truly,
Megan Caines, M.Sc.